R24AG071471

The Collaborative for Aging Research and Engagement (CARE) - Project Summary and Abstract

The goal of the proposed project is to design, develop, and test a dynamic multimedia platform called the Collaborative for Aging Research and Engagement (CARE) platform. This platform is based on our interdisciplinary partnership with the Alzheimer's Association, the Alzheimer's Association Greater Indiana Chapter (AAGIC), the Indiana Alzheimer Disease Research Center (IADRC), and the IADRC's Community Advisory Board (CAB). Our partnership is guided by the National Institute of Aging (NIA)'s National Strategy for Recruitment and Participation in Alzheimer's and Related Dementias Clinical Research and will facilitate active engagement of African Americans aged 45 years and older to participate in an Alzheimer disease and related dementia (ADRD) statewide and national registries.

The proposed research addresses three goals within seven strategic priority areas within the NIA's plan. Our approach focuses on principles of community-based participatory research approach and the user-centered design process to engage and educate African Americans aged 45 and older to participate in clinical Alzheimer's disease and related dementia (ADRD) studies. As our community partner, the Alzheimer's Association (AA) is equally committed to advancing research and improving recruitment to help researchers find a prevention strategy or disease-modifying treatment for ADRD. Our primary focus is to engage healthy older adults and not people diagnosed with dementia as we need large numbers of healthy and younger adults to participate in research to meet the ambitious goal of finding a prevention or cure by 2025. Thus, there is a need for a registry of adults willing to participate in aging research in general.

Additionally, this project will develop culturally relevant content to educate African Americans aged 45 and older about brain health and ADRD. Facilitated by collaborative networks through IADRC and AAGIC, the long-term goal is to apply the evidence from the CARE platform to serve as an exemplar for increasing brain health and ADRD health literacy and intention to enroll in ADRD clinical studies among African Americans at the regional and national level.

Trustees Of Indiana University

93.866 - Aging Research

National Institute on Aging (NIA) [HHS - NIH]

Indianapolis, Indiana 46202 United States

Single Zip Code

Examining Diversity, Recruitment and Retention in Aging Research (R24 Clinical Trial Not Allowed) (PAR-18-749)

Amendment Since initial award the total obligations have increased 225% from $935,113 to $3,042,048.