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Surveillance of Congenital Heart Defects Among Children, Adolescents, and Adults

ID: CDC-RFA-DD-24-0051 • Type: Posted

Description

Posted: March 14, 2024, 12:00 a.m. EDT
Synopsis: NOFO # DD24-0051 solicits non-research, cooperative agreement applications to conduct population-based surveillance of congenital heart defects (CHD) to describe health outcomes including health equity, with the goal of identifying opportunities to improve the health of all people living with CHD. This project will involve a required component (A) and an optional component (B). The population included in this surveillance activity can be an entire state or a region within a state. Individuals with CHD should be identified through existing data sources including the jurisdiction birth defects surveillance system, electronic health records, administrative data (e.g., Medicaid/Medicare, hospital discharge), or other sources available to funding recipients. Background: Congenital heart defects (CHD) affect about 1% of all births in the United States, and are a leading cause of birth defect-associated infant mortality, morbidity, and healthcare costs. Improvements in early detection and treatment of CHD and consequently in survival have resulted in many people, including those affected by a severe CHD, living into adolescence and adulthood. An estimated two million persons in the U.S. are living with a CHD, including over one million adults; about 12% of these affected adults have a severe CHD. Most current efforts to conduct population-based surveillance of CHD have focused on monitoring newborns. However, little data exist on the descriptive epidemiology of CHD beyond early childhood in the U.S. Despite the public health burden, the lack of population-based surveillance precludes reliable data on people with CHD, their survival, healthcare utilization, and characteristics associated with long-term outcomes. Through this surveillance activity, these data will be assessed, enabling and informing efforts to improve the health and well-being of people with CHD. Objectives: Component A objectives include: (1) assess survival, comorbidities, healthcare utilization during the period 2021-2023, and characteristics associated with long-term outcomes among people with CHD; (2) assess health equity among people with CHD; (3) examine state and national healthcare policies that have an impact on people with CHD; (4) examine COVID-19 and related data such as health care utilization during the pandemic among people with CHD; and (5) work with local/state partners to use site-specific CHD data. Component B objectives include: (1) develop and refine a machine learning algorithm for the surveillance data collected through Component A; and (2) apply this machine learning algorithm to data collected from all recipients funded through Component A.
Posted: March 14, 2024, 12:00 a.m. EDT
Posted: March 14, 2024, 12:00 a.m. EDT
Posted: March 14, 2024, 12:00 a.m. EDT
Posted: March 14, 2024, 12:00 a.m. EDT
Posted: March 14, 2024, 12:00 a.m. EDT
Posted: March 14, 2024, 12:00 a.m. EDT
Posted: March 14, 2024, 12:00 a.m. EDT
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Posted: March 14, 2024, 12:00 a.m. EDT
Posted: Sept. 7, 2023, 12:00 a.m. EDT
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Posted: Sept. 7, 2023, 12:00 a.m. EDT
Posted: Sept. 7, 2023, 12:00 a.m. EDT
Posted: Sept. 7, 2023, 12:00 a.m. EDT
Posted: Sept. 7, 2023, 12:00 a.m. EDT

Overview

Category of Funding
Health
Funding Instruments
Cooperative Agreement
Grant Category
Discretionary
Cost Sharing / Matching Requirement
False
Source
On 3/14/24 National Center on Birth Defects and Developmental Disabilities posted grant opportunity CDC-RFA-DD-24-0051 for Surveillance of Congenital Heart Defects Among Children, Adolescents, and Adults with funding of $3.1 million. The grant will be issued under grant program 93.073 Birth Defects and Developmental Disabilities - Prevention and Surveillance. It is expected that 8 total grants will be made worth between $50,000 and $800,000.

Timing

Posted Date
March 14, 2024, 12:00 a.m. EDT
Closing Date
May 14, 2024, 12:00 a.m. EDT Due in 26 Days
Closing Date Explanation
Electronically submitted applications must be submitted no later than 11:59 pm ET on the listed application due date.
Last Updated
April 2, 2024, 1:25 p.m. EDT
Version
9
Archive Date
June 13, 2024

Eligibility

Eligible Applicants
Unrestricted (i.e., open to any type of entity above), subject to any clarification in text field entitled "Additional Information on Eligibility"
Independent school districts
Native American tribal organizations (other than Federally recognized tribal governments)
Special district governments
County governments
Nonprofits having a 501(c)(3) status with the IRS, other than institutions of higher education
Public and State controlled institutions of higher education
Native American tribal governments (Federally recognized)
Nonprofits that do not have a 501(c)(3) status with the IRS, other than institutions of higher education
City or township governments
Private institutions of higher education
Others (see text field entitled "Additional Information on Eligibility" for clarification)
State governments
Public housing authorities/Indian housing authorities
Additional Info
Organizations will determine eligibility per Section 399V-2 of the Public Health Service Act (42 U.S.C. 280g-13)

Award Sizing

Ceiling
$800,000
Floor
$50,000
Estimated Program Funding
$3,100,000
Estimated Number of Grants
8

Contacts

Contact
Centers for Disease Control - NCBDDD
Contact Email
Contact Phone
(770) 488-2756

Documents

Posted documents for CDC-RFA-DD-24-0051

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